Hi,I'm now going on to 5 months post my SCI. Maybe I'm just impatient but I need to get some advise. Here comes my story...
December I had a motocross injury and fractured my spine in 2 places, T6 & T8.I was discharged beginning February. Just before that I started complaining about burning sensation on my left arm, this later I found out is neropathic pain. In the last 2 months it has spread and gotten a lot worse, this all was above my injury, now my lower back has an even stringer burning pain, plus more when i move, i feel like a "raw" pain(sorry, best way I can describe it)I have mentioned this pain to the neuro specialist which I had to wait for 2 months for to see and he just past me on the the pain management clinic, which I'm also waiting for 3 weeks till I can see them. My skin is so sensitive at the moment, that I can hardly play with my 2 year old son ( he loves hugging and grabbing you). When I allow him to do it, it feels like Im being shocked, ;ike a sensory overload. And this is the part thats killing me, not being in a wheelchair, but the pain the stopping me to play with my son. It brings tears to my eyes just typing this.
I feel the doctors here (Qatar) are just doing reactive doctoring, what I mean by that is that ... e.g. I fracture my spine, they react by adding a support to my spine. Now when I go see them its like oh, the scar healed nicely, this is the MRI of 2 months back. Ok, come see me again in 3 month.
Really?? this is not the same as breaking an arm or something!
Surely there should be more to that? Shouldn't there be like ok, "this is the other possibilities" or "if you have this and that concerns, then this is what we can do"I'm I just a newbie still and expecting too much? Should I just man up wait for time to pass and hope it all gets better?
The reason why I'm posting here is I want to know if I should get a second opinion? What is a good SCI Center to contact?
Thanks for reading my post...Neil