• The online Community for people with spinal cord injury, their relatives and friends

  • The online Community for people with spinal cord injury, their relatives and friends

  • The online Community for people with spinal cord injury, their relatives and friends

Many people feel lonely

Pro-WELL study – partnership – "stressors"

The Pro-WELL study is a representative survey on the well-being of 133 couples where one of the partners is paraplegic. The study was financed by the Swiss National Science Foundation. However, it is part of the big social research project SwiSCI by Swiss Paraplegic Research. This study aims to investigate how “People with SCI & other disabilities” cope in life.

In September, the researchers invited the couples surveyed to Nottwil, to present them with the results of the study. It was a very cordial meeting. Unfortunately, only eight of the surveyed couples were present, but at least their profiles were very different. Erwin Zemp, Member of the Board of Trustees of Swiss Paraplegic Foundation and Head of the department Life Guidance of Swiss Paraplegics Association, was also there. A lively discussion developed.

The deeper the relationship, the better it endures the burden associated with the disability.

The results of the survey mostly confirmed, what people had already expected – also some old worldly wisdoms. But thanks to Pro-WELL, they are now statistically proven. Nowadays, this is the only way to justify therapeutic projects and to achieve political demands.

The survey answers prove that well-being and quality of the relationship, but also health and vitality are interdependent. This also proves other related principles: The more we care for our partner, the more we can expect to receive. This determines the quality of our (love) relationship. The deeper the relationship, the better it endures the burden associated with the disability: The impaired person also impairs their fellow human beings. Therefore, couples are not only connected, but also wedged and have to preserve their relationship more than others.

Almost half of the people with SCI state that they feel lonely time and again.

This also results in roll and loyalty conflicts, which are also described in the study: The working partner without SCI who also cares for his/her partner, is always torn, because he/she repeatedly faces the conflict whom to serve first. And many disabled people think they have to compensate their alleged physical weaknesses with great enthusiasm at work.

The authors of the study refer to these conflicts as “stressors” that increase the already existing pressure. They recommend to mitigate – or even better – avoid these situations. They also recommend speaking with the employer about this problem. We perceive each conflict, each “stressor” as a disproportionate burden. This might lead to depression and circulatory problems: we end up in a vicious circle that results in loneliness. According to the survey, this is already part of our lives: almost half of the people with SCI state that they feel lonely time and again, whereas it’s only one third of their partners. This result is surprising with respect to its extent. The study only reveals it.

We can only speculate about the reasons: As wheelchair users, we frequently assume the role of the crank – even if we are together with other people. When we are together with others – even in intimate partnerships – we often realize that people without SCI have no clue what it means to live with it. Sometimes, we are surprised to see, what it does to us. And then we feel lonely!

The more laid back we are, the easier and better our social life. This was also proven by the results of the study.

Links:

Rate this post

Comments (0)

There are no comments on this topic yet.
Be the first to comment!
Forum
Most Recent Answers
4975 odyssita
Explaining what life with a chronic disability is like
Hi cAro, all the best for your research! I am very curious to hear about the results once they are being published. Thank you for researching this...
6 odyssita 2018-05-02
4855 Wheelie
Scewo
Good news for all who would like to try out the Scewo by themselves: according the Scewo constructors, the feedback on their invention was so...
5 Johannes 2018-03-12
Ask the Expert
Most Recent Answers
3 Dr._Hans_old 2015-07-20
3 Dr._Hans_old 2015-05-07

Blog
Most Recent Blog Posts
kitwan 2020-05-11 In Society
Why disability inclusion matters to businesses
Recognizing the value of the world's largest minority group
0
Simea_ 2020-05-23 In Science
Aquatic therapy
What are the benefits for people with spinal cord injury?
0
The eye-catching disability icebreaker
Wheelchair covers that spark conversations and connections
0
Wiki
Most Read
Anatomy and physiology of respiration
Breathing is the most normal thing in the world for us. We hardly think about it, even though we breathe in and out about 20,000 times per day. We breathe more when we are active and exerting ourselves, and we breathe less when we are...
Social skills increase quality of life
Today strawberry yogurt is on Anna’s* grocery list. In front of the dairy section she notices that she cannot reach the yogurt sitting in a wheelchair. Many stressed people are rushing through the crowded store during rush hour and she does not...
Mobilisation / Transferring
What do I need to consider with regard to the shoulders? The shoulder is the most heavily-strained joint with regard to mobilisation – that applies to sitting up and transferring. It is therefore important to protect the shoulders whenever it is...

About the Community
Most Recent Topics
2020-04-27 In Latest
Backcountry skiing as a paraplegic with WIITE
Certain sport activities seem to be fantasies to resume when one becomes paraplegic. Now, however, it's one less: an avid fan of winter sports who is paralyzed from the waist down has recently...
0
2020-05-12 In Latest
Crip Camp on Netflix: relive the disability revolution in the 70s
Looking for a new Netflix show to watch? Check out "Crip Camp: A Disability Revolution", a new documentary about Camp Jened: a summer camp for youngsters with disabilities back in the early...
0
2020-05-19 In Latest
Globi, robots and Swiss Paraplegic Centre: a new book!
Globi is on an adventure again! This time the popular Swiss cartoon character makes his first visit to Swiss Paraplegic Centre (SPC) in Nottwil. He visits his friend Nik who rehabilitates at SPC...
0

Contact

Swiss Paraplegic Research
Guido A. Zäch Strasse 4
6207 Nottwil
Switzerland

This email address is being protected from spambots. You need JavaScript enabled to view it.
T 0800 727 236 (from Switzerland, free of charge)
T +41 41 939 65 55 (from other countries, charges apply)

Be part of the Community – sign up now!